You are not alone

In 2005, Acromegaly Community was formed as an online support group for patients to discuss their issues with other patients. Today, we have over 2,800 patients and caretakers worldwide advocating for each other and for Acromegaly.

 

Our Mission

OUR MISSION is to provide an emotional and communal support network for people touched by Acromegaly. We offer a central location for medical information on issues including: surgery, medication, radiation, and post diagnosis support. Most importantly, we work to provide a network of emotional support for our Acromegaly patients, their friends and their family.

 

“You may have to fight a battle more than once to win it.”

— Margaret Thatcher

 

What We’ve Achieved

  • 2005 - Acromegaly Community founded

  • 2010 - Acromegaly Community becomes officially recognized as a 501(c)(3) charity by the IRS and Charity Navigator. 

  • 2009 - Women’s Acromegaly Support group launches on Facebook

  • 2011 - Acromegaly Community holds first patient conference in Las Vegas, NV 

  • 2012 - Acromegaly Community’s second patient conference in Las Vegas, NV

  • 2014 - Patient Conference held in Tampa, FL

  • 2016 - Patient Conference held in Chicago, IL

  • 2019 - Patient Conference held in New Orleans, LA (in combination with Pituitary Society)

  • 2020

    • 5 Support groups: Main, Gender based, Fitness, Loved ones

    • Education by the Experts Series launches

  • 2021

    • Reached 3,100 members on our Facebook support group

    • Patient Focused Drug Development program, January 21, 2021

  • 2022

    • Hybrid Patient Education Conference in Milpitas, CA

    • Series of Advertorials (3 virtual meetings) regarding Supporting a Diagnosis of Acromegaly, Emotional Wellness with Acromegaly, and Rare Condition Patient Empowerment