Upcoming Events

Acromegalics and their family are meeting around the world to find support, educate themselves and their loved ones, and become part of our special #acrofamily. No matter how small or large, these events touch our lives and help us accept each other, without judgments or prejudices. Please join us!

Education by the Expert: Catherine Jonas, CMC, LMFT

How are you coping with your diagnosis? Do you feel you need help with coping tools, mental health and how to help not only yourself but those around you understand Acromegaly and the mental toll it can take on you and those around you? Join us as Catherine Jonas, CMC, LMFT joins us for a free webinar to discuss Acromegaly and Mental Health.
When: June 7, 2020
Time: 4pm PST / 5pm MST / 6pm CST / 7pm EST
Platform: Zoom

Acromegaly: EL-PFDD

Due to COVID19, this meeting has been postponed. Please stay tuned.

When: TBD
Location: College Park Marriott in Hyattsville, MD

Acromegaly Community, Inc. invites you to an externally-led Patient Focused Drug Development (EL-PFDD). Participants can attend in-person or virtually

EL-PFDD meetings provide an opportunity for patients, their families and caregivers to share critical information about the impact of their disease on their daily lives and their experiences with currently available treatments. Patients’ experiences provide valuable insight for the U.S. Food and Drug Administration (FDA) and other key stakeholders, including researchers, medical product developers and health care providers.

Thank you to our sponsors for helping make this PFDD meeting happen: 

ionis pharma logo 600x430

2021 Acromegaly Conference

It's never too early to start planning to attend the next International Acromegly Community Conference!  

Our conference focuses on patient education, building community relationships, getting medical questions and concerns addressed, and building a loving and safe support network! You will walk away knowing you are not alone and that your #acrofamily has your back! 

Details and dates are to come, but we know we'll be meeting again in 2021! 

Acromegaly does not define us. We do not let our diagnosis hold us back from living a full and enriched life. Some have found passion, purpose, and inspiration through their diagnosis. These people bring inspiration, and we call this our "Faces of Hope".

Say hello.