Acromegalics and their family are meeting around the world to find support, educate themselves and their loved ones, and become part of our special #acrofamily. No matter how small or large, these events touch our lives and help us accept each other, without judgments or prejudices. Please join us!
Acromegaly Community is proud to bring you a new online event - Education by the Experts!
Join us the each month when our favorite experts share their knowledge with patients and their support network. Discussion topics will include treatment options, impacts on mental health, nutrition, clinical trials, etc.
What is Compassion Fatigue and how does this impact you as an Acromegalic? Learn how you know if you suffer from Compassion Fatigue and what steps can you take to take better care of yourself. Juliette will specifically discuss how having a chronic and rare disease impacts Compassion Fatigue.
When: January 21, 2021
Acromegaly Community, Inc. invites you to an externally-led Patient Focused Drug Development (EL-PFDD). Due to COVID-19, this event will be held virtually.
EL-PFDD meetings provide an opportunity for patients, their families and caregivers to share critical information about the impact of their disease on their daily lives and their experiences with currently available treatments. Patients’ experiences provide valuable insight for the U.S. Food and Drug Administration (FDA) and other key stakeholders, including researchers, medical product developers and health care providers.
Thank you to our sponsors for helping make this PFDD meeting happen:
It's never too early to start planning to attend the next International Acromegly Community Conference!
Our conference focuses on patient education, building community relationships, getting medical questions and concerns addressed, and building a loving and safe support network! You will walk away knowing you are not alone and that your #acrofamily has your back!
Details and dates are to come, but we know we'll be meeting again in 2021!