Upcoming Events

Acromegalics and their family are meeting around the world to find support, educate themselves and their loved ones, and become part of our special #acrofamily. No matter how small or large, these events touch our lives and help us accept each other, without judgments or prejudices. Please join us! 

Bone MicroArchitecture Clinical Trial Seeking Volunteers

Are you doing your part to advance the understanding regarding acromegaly?  There are several studies going on right now that are listed on www.clinicaltrials.gov 
 
The following study, conducted by Dr. Pamela Freda of Columbia University, is now available for those located in the Northeastern USA and currently using Somavert.  This would be a great way to get your foot into the door of working with a great doctor and to advance research.
 
Dr. Freda is conducting a study entitled Pilot Study of Bone Microarchitecture in Pegvisomant Treated Patients. This study is open to patients treated with Pegvsiomant for at least 1 year with a normal IGF-1 level. It includes DXA, high resolution peripheral CT to examine bone micro architecture and measurement of bone markers and GH and IGF-1.
 
Requires a one-time 2-hour visit. The study is also registered on www.clinicaltrials.gov. 13 spots available at time of posting.
 
Interested patients call 212-305-4921 or 212-305-2254.

2019 Acromegaly Conference

Date: March 20-22, 2019

Where: New Orleans, Louisiana, USA

Acromegaly Community and Acromegaly Alliance are proud to present a community event for Physicians, Nurses and Patients focused specifically on Acromegaly from March 20 - March 22, 2019 in New Orleans, LA.

Join us Thursday for a Patient Educational Day and Friday for combined sessions with Physicians and nurses to aid in understanding this race condition and the challenges patients face.

Acromegaly does not define us. We do not let our diagnosis hold us back from living a full and enriched life. Some have found passion, purpose, and inspiration through their diagnosis. These people bring inspiration, and we call this our "Faces of Hope".

Say hello.