Acromegalics and their family are meeting around the world to find support, educate themselves and their loved ones, and become part of our special #acrofamily. No matter how small or large, these events touch our lives and help us accept each other, without judgments or prejudices. Please join us!
When: Tuesday, April 28, 2020
NORD and Acromegaly Community, Inc. invite you to an externally-led Patient Focused Drug Development (EL-PFDD). Participants can attend in-person or virtually. Exact location TBD.
EL-PFDD meetings provide an opportunity for patients, their families and caregivers to share critical information about the impact of their disease on their daily lives and their experiences with currently available treatments. Patients’ experiences provide valuable insight for the U.S. Food and Drug Administration (FDA) and other key stakeholders, including researchers, medical product developers and health care providers.
It's never too early to start planning to attend the next International Acromegly Community Conference!
Our conference focuses on patient education, building community relationships, getting medical questions and concerns addressed, and building a loving and safe support network! You will walk away knowing you are not alone and that your #acrofamily has your back!
Details and dates are to come, but we know we'll be meeting again in 2021!