You are not alone

About Us

OUR MISSION is to provide an emotional and communal support network for people touched by Acromegaly. We offer a central location for medical information on issues including: surgery, medication, radiation, and post diagnosis support. Most importantly, we work to provide a network of emotional support for our Acromegaly patients, their friends and their family.

Find Support

We know how difficult it is to find a doctor to "listen" and take your issues seriously. It's difficult to find doctors familiar with Acromegaly, the signs, the systems, the associated issues.

Since 2009, the Acromegaly Community has been compiling a list of trusted Endocrinologists, Neurosurgeons, Neurologists, Psychiatrists, Otolarynogologists, Pain Specialists, Family Practitioners, etc. from all around the world for you and your family to reach out. Locate your area and click on the dots to see our recommendations.

If you do not find your doctor listed below, and are interested in adding them to the list, please contact us at This email address is being protected from spambots. You need JavaScript enabled to view it..

Upcoming Events

Acromegalics and their family are meeting around the world to find support, educate themselves and their loved ones, and become part of our special #acrofamily. No matter how small or large, these events touch our lives and help us accept each other, without judgments or prejudices. Please join us!

Bone MicroArchitecture Clinical Trial Seeking Volunteers

Are you doing your part to advance the understanding regarding acromegaly? There are several studies going on right now that are listed on www.clinicaltrials.gov

The following study, conducted by Dr. Pamela Freda of Columbia University, is now available for those located in the Northeastern USA and currently using Somavert. This would be a great way to get your foot into the door of working with a great doctor and to advance research.

Dr. Freda is conducting a study entitled Pilot Study of Bone Microarchitecture in Pegvisomant Treated Patients. This study is open to patients treated with Pegvsiomant for at least 1 year with a normal IGF-1 level. It includes DXA, high resolution peripheral CT to examine bone micro architecture and measurement of bone markers and GH and IGF-1.

Requires a one-time 2-hour visit. The study is also registered on www.clinicaltrials.gov. 13 spots available at time of posting.

Interested patients call 212-305-4921 or 212-305-2254.

2019 Acromegaly Conference

Date: March 20-22, 2019

Where: New Orleans, Louisiana, USA

Acromegaly Community has been asked by the Pituitary Society to hold our educational conference in conjunction with the Pituitary Society Conference. This will allow hundreds of endocrinologist, nurses and patients to be at the same venue at the same time, increasing educational awareness. Acromegaly Community proudly works with the Pituitary Society on advancement in the care and treatment for Acromegaly.

details coming soon

Acromegaly does not define us. We do not let our diagnosis hold us back from living a full and enriched life. Some have found passion, purpose, and inspiration through their diagnosis. These people bring inspiration, and we call this our "Faces of Hope".

View Our Faces of Hope