You are not alone You are not alone

About Us

OUR MISSION is to provide an emotional and communal support network for people touched by Acromegaly. We offer a central location for medical information on issues including: surgery, medication, radiation, and post diagnosis support. Most importantly, we work to provide a network of emotional support for our Acromegaly patients, their friends and their family.

Find Support

We know how difficult it is to find a doctor to "listen" and take your issues seriously. It's difficult to find doctors familiar with Acromegaly, the signs, the systems, the associated issues.

Since 2009, the Acromegaly Community has been compiling a list of trusted Endocrinologists, Neurosurgeons,  Neurologists, Psychiatrists, Otolarynogologists, Pain Specialists, Family Practitioners, etc. from all around the world for you and your family to reach out. Locate your area and click on the dots to see our recommendations. 

If you do not find your doctor listed below, and are interested in adding them to the list, please contact us at This email address is being protected from spambots. You need JavaScript enabled to view it..

Upcoming Events

Acromegalics and their family are meeting around the world to find support, educate themselves and their loved ones, and become part of our special #acrofamily. No matter how small or large, these events touch our lives and help us accept each other, without judgments or prejudices. Please join us! 

Acromegaly: Submit PFDD Comments

On Thursday, January 21, 2021, Acromegaly Community met with the FDA for a virtual Patient Focused Drug Development (PFDD) meeting. The PFDD meetings provide an opportunity for patients, their families and caregivers to share critical information about the impact of their disease on their daily lives. Patients’ experiences provide valuable insight for the U.S. Food and Drug Administration (FDA) and other key stakeholders, including researchers, medical product developers and health care providers.
 
You can still watch the recorded meeting and submit your comments to be shared with the FDA until February 21, 2021. Just click the button below! 

Acromegaly Community wishes to thank the following companies for their support of our Patient Focused Drug Development program.  Working together to improve the lives of patients.  For this we say thank you for helping to make our voices heard.

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Crinetics Logo On White

Ionis Pharma Logo

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Novartis Logo 2018 SQ

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Recordati Rare Diseases

Acromegaly does not define us. We do not let our diagnosis hold us back from living a full and enriched life. Some have found passion, purpose, and inspiration through their diagnosis. These people bring inspiration, and we call this our "Faces of Hope".

Say hello.