You are not alone

About Us

OUR MISSION is to provide an emotional and communal support network for people touched by Acromegaly. We offer a central location for medical information on issues including: surgery, medication, radiation, and post diagnosis support. Most importantly, we work to provide a network of emotional support for our Acromegaly patients, their friends and their family.

Find Support

We know how difficult it is to find a doctor to "listen" and take your issues seriously. It's difficult to find doctors familiar with Acromegaly, the signs, the systems, the associated issues.

Since 2009, the Acromegaly Community has been compiling a list of trusted Endocrinologists, Neurosurgeons,  Neurologists, Psychiatrists, Otolarynogologists, Pain Specialists, Family Practitioners, etc. from all around the world for you and your family to reach out. Locate your area and click on the dots to see our recommendations. 

If you do not find your doctor listed below, and are interested in adding them to the list, please contact us at This email address is being protected from spambots. You need JavaScript enabled to view it..

 

Upcoming Events


Acromegalics and their family are meeting around the world to find support, educate themselves and their loved ones, and become part of our special #acrofamily. No matter how small or large, these events touch our lives and help us accept each other, without judgments or prejudices. Please join us! 

2021 International Acromegaly
Community Conference

It's never too early to start planning to attend the next International Acromegly Community Conference!  

Our conference focuses on patient education, getting medical questions and concerns addressed, and building a loving and safe support network! You will walk away knowing you are not alone and that your #acrofamily has your back! 

Details and dates are to come, but we know we'll be meeting again in 2021! 

Acromegaly does not define us. We do not let our diagnosis hold us back from living a full and enriched life. Some have found passion, purpose, and inspiration through their diagnosis. These people bring inspiration, and we call this our "Faces of Hope".

Say hello.