Resources

There are resources available to you as a patient that will help you with your diagnosis. 

Patient Toolkit

Being diagnosed with a rare disease can be stressful, daunting and confusing. Where do you start to begin not only to understand this disease, but how to take care of yourself. No doubt there are so many questions swirling in your head - and you just don't know where to start. So many Acromegalics find that they have maybe become reclusive or depressed, which makes it even harder to ask for help,or reach out for support. 

Because of this, the Acromegaly Community is finding ways to help our newly diagnosed #AcroFamily. The toolkit continues to grow each day, but below you can find some downloadable files that could help with questions for your medical team, a packing list for your hotel stay, etc. We hope you find this helpful! If you find that you still have questions, or that you have suggestions for things to include in our Patient Toolkit,  please contact us at This email address is being protected from spambots. You need JavaScript enabled to view it.

Discrimination at Work

Do you think that your employer is discriminating against you? There are laws in place for people suffering from medical discrimination.

If you live in the United States and are struggling to handle your medical struggles and your employment circumstances, you have options.

Personal Pain Management

  • Pain is a negative sensation caused by noxious stimuli that is registered by the brain which was relayed from receptors externally or internally from the body.
  • Pain is tolerated differently by every person, but it’s method of travel is consistent for every person.
  • The painful stimulus disturbs the nerve endings sending the pain signal to an afferent nerve. The afferent nerve relays the signal to spinal cord which in turn, sends the message to the brain.
  • The painful stimulus disturbs the nerve endings sending the pain signal to an afferent nerve. The afferent nerve relays the signal to spinal cord which in turn, sends the message to the brain.

Articles & Good Reads

Pituitary World News Technology Corner

Acromegaly does not define us. We do not let our diagnosis hold us back from living a full and enriched life. Some have found passion, purpose, and inspiration through their diagnosis. These people bring inspiration, and we call this our "Faces of Hope".

Say hello.