There are resources available to you as a patient that will help you with your diagnosis.
Being diagnosed with a rare disease can be stressful, daunting and confusing. Where do you start to begin not only to understand this disease, but how to take care of yourself. No doubt there are so many questions swirling in your head - and you just don't know where to start. So many Acromegalics find that they have maybe become reclusive or depressed, which makes it even harder to ask for help,or reach out for support.
Because of this, the Acromegaly Community is finding ways to help our newly diagnosed #AcroFamily. The toolkit continues to grow each day, but below you can find some downloadable files that could help with questions for your medical team, a packing list for your hotel stay, etc. We hope you find this helpful! If you find that you still have questions, or that you have suggestions for things to include in our Patient Toolkit, please contact us at This email address is being protected from spambots. You need JavaScript enabled to view it.
Medications used to treat Acromegaly can be very costly, thus unaffordable for so many patients. Both Laneotride and Octreotide can cost $5,000 per shot, without health insurance. With health insurance, the cost comes down to around $3,000 per shot. To help with these exorbitant costs, the pharmaceutical companies offer patient assitance. Please click on the links below to learn more and apply for assistance.
Dedicated Patient Care Specialists from the Chiasma Access & Patient Support (CAPS) program will help you and your doctor throughout your treatment journey. You can call the CAPS Patient Care team today at 1-833-3GO-CAPS (1-833-346-2277) or email us at This email address is being protected from spambots. You need JavaScript enabled to view it. to learn how we can help you get started on MYCAPSSA.
Your PCC will look for other ways to help get coverage, if your insurance benefits do not cover therapy with SOMAVERT. Your PCC may also help you appeal the decision. This means he or she asks your insurance company to extend your coverage to include SOMAVERT treatment.
Calls about insurance reimbursement are welcome during the hours of 9 AM to 7 PM Eastern Time at 1-800-645-1280.
*Certain programs and services powered by Pfizer RxPathways®.
Patients and Health Care Providers can also call IPSEN CARES® at (866) 435-5677
Learn more about this program
Support for patients includes:
To learn more, call 1-800-282-7630.
* Limitations apply. This offer is only available to patients with private insurance. The program is not available for patients who are enrolled in Medicare, Medicaid, or any other federal or state health care program. Novartis reserves the right to rescind, revoke, or amend this program without notice. For full Terms and Conditions, visit www.Copay.NovartisOncology.com or call 1-877-577-7756.
Encourage your patients to find out if they are eligible to enroll in the Universal Co-pay Program by visiting www.Copay.NovartisOncology.com or calling 1-877-577-7756.
Do you think that your employer is discriminating against you? There are laws in place for people suffering from medical discrimination.
If you live in the United States and are struggling to handle your medical struggles and your employment circumstances, you have options.
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