Acromegaly Patient Focused Drug Development Meeting

Written Comments

If you are a person living with Acromegaly or a caregiver, you are invited to comment on one or more of the following Discussion Topics. Please provide specific examples to help us understand your feedback.
Please note we are only taking comments as they relate to the topics below, not questions.


Submit your comments to through February 21, 2021!  

 

Discussion Topics

Of all the symptoms that you experience (or your loved one experiences) because of acromegaly, what are the 1-3 symptoms that have the most significant impact on quality of life?

How do these symptoms impact specific activities that are important to you?

What are you doing (or what is your loved one doing) to help treat acromegaly, and how well are those treatments working?

What are the most significant downsides to those treatments?


Acromegaly Community wishes to thank the following companies for their support of our Patient Focused Drug Development program.  Working together to improve the lives of patients.  For this we say thank you for helping to make our voices heard.

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Crinetics Logo On White

Ionis Pharma Logo

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Novartis Logo 2018 SQ

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Recordati Rare Diseases

Acromegaly does not define us. We do not let our diagnosis hold us back from living a full and enriched life. Some have found passion, purpose, and inspiration through their diagnosis. These people bring inspiration, and we call this our "Faces of Hope".

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